What is the I Refuse campaign for Epidermolysis Bullosa Awareness

I Refuse is a campaign used to reach out to others and get them involved in raising awareness for Epidermolysis Bullosa and supporting the research for a cure.

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This site irefuseeb.org currently has a traffic classification of zero (the lower the higher page views). We have probed nineteen pages within the site irefuseeb.org and found twenty websites interfacing with irefuseeb.org. We were able to note one contacts and locations for irefuseeb.org to help you reach them. We were able to note three public web platforms acquired by irefuseeb.org. This site irefuseeb.org has been on the internet for six hundred and fifty weeks, fifteen days, fourteen hours, and eighteen minutes.
Pages Analyzed
19
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3
Online Since
Jul 2012

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IREFUSEEB.ORG HISTORY

This site irefuseeb.org was created on July 11, 2012. It is now six hundred and fifty weeks, fifteen days, fourteen hours, and eighteen minutes young.
REGISTERED
July
2012

DOMAIN AGE

12
YEARS
5
MONTHS
15
DAYS

LINKS TO WEB PAGE

Butterfly Love.

Who would have thought love could be so powerful. Follow, Share and help awareness. God Bless our Butterfly Angels. The BMT and an amazing families story. Meet some friends of mine PT. Meet some friends of mine PT. Sunday, 10 May 2015. I had brought with me 37kg.

Childrens Cancer Research Fund

Your gift means better treatments for childhood cancer. Stay updated on our progress toward ending childhood cancer. This iframe contains the logic required to handle Ajax powered Gravity Forms. This is the story of. You can be a part of their story. Do You Want A Warm Blanket? I Went There Once. Your support will create better, safer treatments for children facing cancer for years to come.

Our Young Warrior Evan Living with Harlequin Ichthyosis

Thursday, August 18, 2016. My little man walking up to accept the honor! Between t.

The Rinaldi Family Blog

Sharing moments in time spent with the ones I cherish. Help Me Help Others Photo Project. Thursday, February 5, 2015.

avas wings Epidermolysis Bullosa Awareness

Update and EB Awareness Week. It needs more awareness, and thats starts with us.

Tinys Pawprints

A place for me to write down my thoughts, inspirations, and events in my life. Saturday, August 31, 2013. Summer is Coming to an End, Garden Update. The second photo is from the other side. I think this will be growing lettuce soon. I need to remember to look up when to harvest the garlic.

Kiira Kinkle This is the story of Kiira and her life with Epidermolysis Bullosa

This is the story of Kiira and her life with Epidermolysis Bullosa. Thank you for your continued prayers.

Paper Thin Butterfly Skin. The Story of Our Butterfly Prince

Saturday, August 1, 2015. Regardless, I like to write. Here I can openly exress myself, and that is what I need. I hope everyone is OK with that. He also has a little sister! Here is a current picture of my little darlings.

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CONTACTS

Fragile Skin Foundation

Christie Zink

30247 Merlin Road

Melrose, Minnesota, 56352

US

IREFUSEEB.ORG HOST

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PAGE TITLE

What is the I Refuse campaign for Epidermolysis Bullosa Awareness

DESCRIPTION

I Refuse is a campaign used to reach out to others and get them involved in raising awareness for Epidermolysis Bullosa and supporting the research for a cure.

CONTENT

This site irefuseeb.org states the following, "Through the Eyes of a Survivor." Our analyzers noticed that the website stated " Meet Advocates for Epidermolysis Bullosa." The Website also stated " Sample Letter to the Editor. Reaching Out to Policy Makers. About I Refuse EB? I Refuse EB was launched in 2012 by EB advocate Christie Zink to help raise awareness for EB, promote advocacy and support the research efforts taking place at the University of Minnesota. U of M BMT Center."

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irefusestamp1plz DeviantArt

This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. You can edit widgets to customize them. The bottom has widgets you can add! Some widgets you can only access when you get Core Membership.

I Refuse to be Bored We arent bored, and neither should you be.

Setting our Sights on Archery. It started off like any normal Friday night, until the Starz came out! Domo looks quite stylish with that fedora and those two beautiful girls. Once the stage was prepared, . It was time for a night of fun, . After all that singing, it was time for the after-party! Or not. On July 20, 2012.

I Refuse To Comply new

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I Refuse To Go Quietly!

A River Runs Through It. and other stories! Edit I have no idea why these images are now missing! Well - a bit of a long hiatus but now hopefully back on track.